Managing Excessive Tiredness & Fatigue Co-production

Every-One is pleased to facilitate the Lincolnshire Managing Excessive Tiredness & Fatigue Co-production Group as part of the NHS Charities Together.

Based on the great work that has been done by the Long Covid Co-production Group, we are broadening the group to become a Managing Excessive Tiredness and Fatigue Co-production Group.

Join us, if you have been diagnosed with, are receiving treatment for, or are self-managing extreme tiredness and fatigue (related to the list below).  Sharing your experience will help shape and improve community-based support for you and people like you who are living with the conditions.

  • ME / CFS (Myalgic encephalomyelitis or Chronic Fatigue Syndrome)
  • Post viral fatigue syndrome
  • Long Covid
  • Any long-term condition where fatigue is a primary issue

Join with us to help shape community-based support for others and to share experiences of living with these conditions.

Click here to register your interest and we will send you the link to the meeting.

For more information on how you can join the group or work with them, please email



In December 2021, a group of people affected by Long Covid in Lincolnshire, came together with health professionals to form the Lincolnshire Long Covid Co-production Group. Meetings were held virtually approximately once per month. The group worked to raise awareness of Long Covid and to develop new support for people, such as the Lincolnshire Long Covid Information Hub

Members of the Co-production group kindly shared videos of their experience of Long Covid which you can see here.

In July 2023, it was agreed to expand the work of the group to support people managing excessive tiredness & fatigue. The group was therefore renamed.

This infographic illustrates the findings of our second survey with people with lived experience of Long COVID in Lincolnshire.